Access to medicines
To improve access to essential medicines for children with endocrine diseases and diabetes in low and middle income countries
GPED works with Regional Pediatric Endocrine Societies and local pediatric endocrinologists to facilitate sustainable access to medicines that are essential to Pediatric Endocrine care but not readily available, such as fludrocortisone. GPED will offer a platform where experience can be shared and expertise developed. GPED presently focuses on Africa and Latin America. A model that has been successfully by CLAN (Caring and Living as Neighbours) is being used in collaboration with Dr K Armstrong.
Training staff in low and middle income countries
Training of pediatric nurses from Africa in Pediatric Endocrinology and Diabetes
Recent capacity building initiatives, such as the PETC(W)A (pediatric Endocrinology Training Centers in (Western) Africa) programs, have been instrumental in promoting clinical care in pediatric endocrinology and diabetes in sub Saharan Africa by training and graduating more than 80 pediatric endocrinologists. Pediatric endocrinologists traditionally work closely with nurses specialized in pediatric endocrinology and diabetes. GPED aims at offering training in pediatric endocrinology and diabetes to pediatric nurses working with PETC(W)A graduates. We are presently raising funds for the training of a nurse in Ghana.
To support research projects that are performed by Pediatric Endocrinologists in low and middle income countries and are designed to improve clinical care
- Assessment of the Quality of Life in Tunisian Children and Adolescents with Type 1 Diabetes (2014-2016, Dr Leila ESSADDAM, Tunisia) (4000 Euros)
Objective: to understand challenges faced by children with diabetes and their families in Tunisia I order to develop tools to better address their needs
- Neonatal hypocalcemia and Maternal Vitamin D Deficiency (2014-2016, Dr Yasmine OUAREZKI, Algeria) (4400 Euros)
Objective: to assess Vitamin D stores in neonates in order to inform government policies on maternal Vitamin D supplementation in Algeria
- Vitamin D status of Sri Lankan infants and their mothers during the first year of life (2014-2016, Dr Shamya de Silva, Sri Lanka) (10,128 USD)
Objective: To assess the prevalence of vitamin D deficiency among exclusively breastfed infants and their mothers at 2 and 6 months and thereafter at 9 months when weaning has been established. This will support public health policies for Vitamin D supplementation in Sri Lanka.
- Disorders of Sexual Development (DSD) in Neonates in Ghana/Nigeria: Initiating the Long Road towards Efficient and Comprehensive Clinical Care (2013-2016, Drs Ameyaw and Bonsu Asafo-Agyei, Ghana) (4,000 $USD)
Objective: To determine the characteristics of male and female genitalia in Ghana in order to promote early recognition and management of disorders of sexual differentiation in neonates.